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NOTE: SADLY, VICKY HAS BEEN SIGNED OFF WORK SINCE THE START OF 2020 AND IS STILL TOO UNWELL TO WORK
Thank you for your interest in finding out how I'm doing. A lot of people message me saying: "You used to be on social media, TV, and radio all the time, and we miss seeing you on those platforms. We wondered if you were OK?" In short, the answer, sadly, is no. Due to my health issues, my doctor signed me off work from the start of 2020, and I've been too unwell to work ever since. So, life is a real challenge these days as I try to remain hopeful and positive.
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Prior to 2020, I was extremely busy in my role as a broadcaster, writer and campaigner. I rarely stood still for a moment. I regularly appeared on national TV and radio (BBC One, Sky News, Channel 4, ITV), sometimes multiple times per week, as well as writing for national newspapers like The Guardian and The Telegraph, and gave keynote speeches at large events.
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I seemed able to 'pull it together' for these appearances, but behind the scenes my health had been up and down for years as a result of an autoimmune disease called Scleroderma and a genetic joint disorder called Ehlers-Danlos Syndrome, which causes joints to painfully dislocate. Many of the public engagements I did were followed by pain and fatigue so intense that it left me stuck in bed for days as a result of my chronic conditions. I also have a diagnosis of ME/CFS which explains the unmanageable levels of relentless fatigue and 'brain fog' I've been experiencing.
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Launching my book with Harper Collins in 2018 was the last major project I managed to do, filling that year with media and promotional events for my publishers. It was an intense year, worsening my chronic fatigue and autoimmune symptoms significantly, and my body completely 'crashed' as 2019 came to an end. Stopping work from 2020 onwards has been really tough, as I desperately miss everything I used to be able to do.
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So here we are in 2025. I'm still significantly disabled and still unable to work. I've spent 95% of the last six years stuck in one room, much of that confined to bed, leaving the house only for medical appointments. Socially, I've limited myself to a small "COVID bubble" with a few family members who live nearby, just to reduce the risk of germs, colds and flus (which can knock out my fragile immune system for weeks and weeks), so it's been lonely socially too, as I'm unable to see a wider circle of friends. (I might be one of the only people on Earth, STILL in a COVID bubble!?!)
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Occasionally, if I rest and rest, I can have one "good day" and leave the house, usually for a medical appointment. That day, I might look OK, but if I'm upright and walking around, it means I've rested for days to get the energy to do so. It also means that I'll 'crash' the next day and be almost non-functioning as a result of being out and about. At my worst, I have to use an electric wheelchair as my joints and muscles are so weak.
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I live in hope that someday my health will improve, as I greatly miss my 'old life'. My dream is to be back in action, writing songs, campaigning for LGBTQ equality again in all the ways I did before, doing my television and radio work and writing books and articles. But right now, my ill-health makes a return to work impossible. I'll always be glad I published "Undivided" in 2018, despite the toll it took on my energy and health. Many people have told me that it helped them in their own journey, which makes everything worthwhile.
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Please do send me an email if you'd like to say hello in the meantime. I love hearing from you all about your lives, your stories, and how my book or campaigning work or music has impacted you. Your emails really brighten up my day. I always read every email that comes in. You can reach me at: vickybee1979@hotmail.com
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My very favourite things to receive are voice messages, as sometimes my eyes find reading emails difficult these days, as some of my medical conditions make me sensitive to lights and screens. Feel free to record me a voice message saying hello and send it via email or Facebook Messenger. You'll be making my day!
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Keep me in your prayers, if you are a person who prays, or just send me positive energy through cyberspace, otherwise! I will let you all know if anything changes. Thank you for your support.